So I've made it 6 weeks into this ankle reconstruction journey. I had my cast removed on Wednesday, x-rays taken and a walking cast put on. I am allowed to walk with crutches as much as I want to. It has been somewhat uncomfortable to adjust to weight-bearing at the same time that my ankle was pushed into a new position in the cast but the pain is improving. It is SO GOOD to walk, especially since I've been pretty agitated lately. I can also drive now and do a lot of things that have required help since my operation. It is a lot easier to cope now. I will admit that the longer I am casted the more frustrating the itching is. Nearly all of it is my toes which are inside the cast but can be reached. I keep trying to get the dead skin off but without being able to use water (or alcohol, which they gave me at the clinic to get the majority of the peeling skin off my leg) it's kind of hopeless. So I just try to not scratch them in public. I'm fairly sure I should leave them alone since I don't think I have full sensation in them yet but the itching is pretty compelling and I make it worse by rubbing my toes on the cast liner a lot.
The rest of life moves on, even when it seems it isn't. I got a nasty reminder of that this week when I saw Dr. Mind and talked about a nightmare where he left. And so I got more information than I was prepared for about that. He has been kind of iffy about the other position he was being considered for. Another has come up that I don't think he will not take if it is offered---and the place is rather desperate to hire. So good-bye is coming pretty soon. I may be able to continue working with him via Skype which is good to know but I'd prefer he stay. It's hard because I want him to be happy and to do what he has been dreaming of doing forever. I just wish that it would be a bit closer. I think I'd convinced myself that all was going to be well there and so it was shocking to find out otherwise.Sunday, July 27, 2014
Life
Tuesday, July 22, 2014
Oh so rough
My mom's friend has had some complications (nothing terrible but very difficult for him) with his surgery and so she's been gone more. Yesterday she wound up staying at the hospital all night and so my brother came down. I spent hours with him and while it was ok I'm not so ok now. It was so uncomfortable because there are so many things that feel like they should never be mentioned, yet how do you not mention normal things?
I had to cancel Dr. Mind and of course now I'm crumbling like toast. So I'm wavering on trying a phone session, something that is generally not that helpful. I want to just be able to drive but I can't yet have my leg down that long. All kinds of feelings about my brother came out and so I couldn't sleep last night. When I did get a nap this afternoon I dreamed that Dr. Mind was leaving in a few months and that I was regretting "wasting" these last months that I know I'll have him. And the truth is that I have no idea if that is true; I didn't understand what he told me about the decision being postponed and I just was glad to accept that a few months ago. Now I am back to needing to know and yet I don't think that's a phone call kind of discussion. So I don't know what to do, try to wait a week or try to call in. I guess I'll decide based on what happens with sleep.Saturday, July 19, 2014
Nothing
I realized I haven't said anything here in a long time. That's because I've spent 36 days in bed. I get out to see Dr. Mind or for doctor appointments. I went to Walmart this week briefly and I've gone for a ride or two. I went to Anne's 4th birthday party last week. And that's it. Otherwise I pretty much sit right here with my leg propped on 4 pillows and I read or play on the computer. I watch Netflix a good bit. I get a shower a few times a week and take sponge baths in between. I've learned to wash my hair at the kitchen sink standing on one leg so I can do that when I feel gross. Showering is really hard work and requires my mom to be here for longer than usual so we limit it. I have safety equipment and know how to be safe but it just isn't the safest maneuver.
I go to the ortho Wednesday. They'll take my cast partially off and then send me to xray. When that's done I'll see the ortho and if I'm healing well I'll move into a boot so I can start to do ROM. Frankly I DREAD the boot. They are heavy and my recollection is that they are also hot and itchy. The cast is slightly itchy although usually it is my incisions that itch or dead skin that is around the top of the cast. It really isn't bad with that and it is light and not overly hot. I hate sleeping with it but I'll hate sleeping with the boot more. So I am not excited about this part. Maybe I'll be more excited about it in a few more weeks when the boot means I can start putting weight down. I keep hoping he'll say I can do that now but he said 8 weeks and yesterday was 5 so I think I probably have some time left.I have trouble believing it's time to start therapy. I am still so tired. Not that this will be physically taxing at first but it seems like more energy will be needed soon. I guess I'll be getting that back soon since I'm sure I'll have more when I use more. I hear that being tired into the 4th month is pretty normal and since I still have at least 3 weeks of elevation/bed sitting I'm sure that is true. I do excercise as I can but it is limited. I have gotten incredible balance skills and can clean up messes on the floor without falling now. I'm sure doing that on one foot will serve me well in the future.????.
Saturday, July 12, 2014
Starting to struggle
It's been 28 days now. Honestly that doesn't even seem possible. I'm trying to stay so in the moment and so focused on whatever the next thing that means a change in my life or progress in my healing that time has gotten away from me. Undoubtedly pain pills don't help although I'm about done with those. I will need them again when I start physical therapy but for now it's been 2 days. I still have pain sometimes but it is muscle spasms and the pain pills don't help and I don't like taking the valium prescribed for those because I'm afraid of falls. So I live with them.
I really did pretty well up until the last 2 days. I've been a little teary the last week or so but there were reasons. Trying to sort out how I felt about seeing my brother and then my mother telling me that I could find my little brother who I haven't seen in 13 years online was big. I know that this is not a time I can make decisions that could be painful because I can't deal with them. Yet I want so much to reach out. But now is not the time.Anne is turning 4 next week but her party is this weekend. I am giving her a terrarium kit. I couldn't find a book about this for kids so I wrote one. I've worked really hard at this given it's all been done from bed. I am extremely careful that I make sure that gifts are ok with my sister so that I don't tax parental reserves, give something unwanted or something someone else is giving. Great-grandma on the other side just doesn't do that. So she's giving Anne a fairy garden. It is complete and not the same but also not that different. I cried for a couple hours over that one. (It came too close to the stupid nurse's email).
Thursday, July 03, 2014
Some days
Some days you just can't win.
Yesterday I went to the dr and had my sutures removed and a new cast put on. They were very, very busy (2 hours behind) and although I said it didn't feel right I was assured it was fine and sent alog. Well, it's not. My toe is down and my heel is mostly up unless it is pushed into the place it goes. I can move my ankle in ways I shouldn't. And it rubs on my incisions because it is too loose. At the top I can stick all my fingers in the opening; with a brand new cast it should be more like 2. I fought a hard battle about complaining because I could be wrong but the sensation that my ankle is going to get pulled up into the cast affected my decision. So everyone is annoyed with me and it's fairly likely the casting tech will be too. I can't wait. I'm already exhausted from yesterday's trip so that's the other thing: I'll be so, so tired tonight.
Wednesday, July 02, 2014
3rd week
I've read that the 3rd and 4th weeks post-op for this surgery can be emotionally hard.This is, I think, week 3. I really have been fine except for dealing with how I feel about my brother and seeing him and that just needs to be discussed with Dr. Mind. Tomorrow my cast comes off and I get a new one that may be my last one (to be followed by a boot in all likeliehood; this will be on for I think 6 weeks since he said I could start weightbearing at 8 weeks if I was healing well.
Today has been harder because I've stayed flat on my back or rolled very slightly to the side with my leg elevated as high as it was the first week trying to get the swelling to come down from yesterday's time with Dr. Mind. It was frustrating and I didn't realize how much I've liked my few hours on the couch the last few days. I also think I've been using the milestone of 'stitches out" so had that I was glossing over the new cast. I knew it was happening and I'm even glad because this one is getting too loose (except for the swelling that is almost gone now).Tuesday, July 01, 2014
Life keeps moving on
Yesterday I took a very big step (NOT literally, I only take little hops these days :). My brother was here to help my mom with some stuff and I agreed to have him come visit for a few minutes. It was ok. I handled it much better than I thought I would and in 5 minutes no damage was done. It wasn't really something I anticipated doing quite that way (I had wanted to do this away from home and when I was mobile but this was clearly the way it was supposed to be).
Today I went to see Dr. Mind for the first time in 3 weeks. That's the longest I've gone without a counseling appointment in 12 years I'm pretty sure and certainly for 8.5 years with him. It went well; I'm not at a place where I'm willing to get overly worked up about much so aside from taking that huge risk yesterday because all I can do right now is think about things and that isn't good at all. Plus I'm doing petty well. Oddly vicodin is a good mood stabilizer for me. I have noticed that in the past and this time I was on a lot more of it so it really has kept me level, more level than I almost ever am. I'm almost off it now so the fun should begin; this is my highest risk for mania time of year so we'll see. I am praying that by staying inside all the time this year I'll avoid that because I couldn't handle it. Naturally I now desperately want to talk to Dr. Mind but I can't go back until Monday and even then is a little up in the air depending on how quickly I get the swelling under control. I can keep my foot elevated petty well in the car but sitting in the waiting room I can only prop it on a couch and in the interns' office where we are meeting for now (which is not half as nice as his upstairs office that I can't get to for a while) I can't prop it very far unless I bring my own pillows. So it was not above my head for 75 minutes and it swelled up a great deal. I really need the swelling to come down by Wednesday so that my new cast is tight enough. This one has gotten loose and I accidentally moved my ankle and hurt it yesterday when I stretched after I yawned. I haven't had much pain lately so I didn't like that. I want a tight cast and not tight like it is right now from the swelling. I predict a flat on my back day tomorrow. That means lots of Bridezillas. Yes, I have somehow gotten addicted to a ridiculous reality show. I've never watched one before but I am still too sleepy to follow a series yet and it is hilarious to watch the over-dramatic women on that show. Last night I watched a full 30 seconds that all but 3 words were beeped out. I didn't even know it was possible to string that many curse words together without practicing. It meets my current needs. Hopefully Netflix has many seasons; I haven't actually checked that.
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