Last year Thanksgiving was wonderful and very special. We were on the Outer Banks and we love it there. Anne was at a very funny age. Everything was great but it wasn't a standard Thanksgiving. The year before that Dr. Mind and I agreed there was no way I was participating because I had just gotten out of the hospital with lithium toxicity and still felt like crap plus had no slept in several days between hallucination and the hospital messing up my psych meds, so I skipped it. The year before that I had whooping cough and wasn't allowed near Anne (and other people weren't really going to want to be with me; I was still pretty sick). The year before that was just my mom and I and we ditched all tradition and had a delicious roast recipe that I have never cooked again because the next day I felt funny at work and then we kept sending really sick patients to the ER and my co-wokers teased me that it was making me nervous. Until I said it started that morning. Then they stayed far away. I was so sick I was in the ER twice for fluids and rule out appendicitis and then had to see Dr. Mind twice more in the next week. So it's been a long time since Thanksgiving was normalish. This year it was my brother, mom and I and that's pretty normal. My sister's family alternates grandparents so next year will be more lively but it was nice with just the 3. Not too loud, just the right amount of food, etc.
Friday my mom and sister went shopping for a while and then Anne came up. We've just hung out mostly. We went to a crafts show today and later made a craft I've been waiting to do with her for a few months. She's got a cold and gets tired pretty easily right now so lots of reading and playing on the ipad happened. She played with most of her toys at some point, she just wanted a lot more quiet time.Saturday, November 30, 2013
Thankful
Tuesday, November 26, 2013
ouch
I feel like someone punched me in the face today. Fortunately that did not happen, I merely had a root canal. After the last few days when the pain radiated clear to my shoulder and I took contra-band (not supposed to take with lithium and especially now because my level is up) ibuproferon because nothing else helped, I was pretty sure that nothing the dentist did could top that pain. And I was right, but I am sore.
Last week he told me that since this tooth was already crowned that he would go in through the crown and that it would or wouldn't survive the procedure. He also said that if the tooth was in too bad of a condition from the deep crack it already that I would have to have it pulled. So obviously the best possible scenario was that I would leave with a crowned tooth and no need for a new crown.Wednesday, November 20, 2013
Oh boy
I got my paperwork for medicare a month ago but haven't been brave enough to search for plans until today. I didn't thoroughly look and I avoided the drug plans but I did find out that I can't get a Medigap policy. That means that all co-pays come directly from me. I had hoped to pay for the Medigap to reduce my costs a bit since I have to pay 20% of everything that isn't inpatient and inpatient has high costs too. Ohio is behind in requiring Medigap for disabled people and while I know it is possible it isn't possible in this county.
This is going to make some decisions for me. I need to have ankle surgery and I need to do it before too much more time passes as my ankle is turning in more and more and my achilles is getting tight. As I understand this surgery it requires quite a bit of physical therapy. I am going to be better off to be on home health to get that than to go to outpatient. Which is probably fine; I probably will be homebound then anyway more or less and it pays 100%. But I just never thought that this would be something I'd need. Tuesday, November 19, 2013
Hopeful
I saw the dentist today. My tooth is not infected but based on several things he feels that it is dying and it is time for a root canal. This was further indicated by the 10/12 days of migraines lately. He thinks it is likely that the tooth is contributing. So, between the supplements I'm slowly adding to my daily pile o' pills (and for the next week or 2 antibiotics) there is hope that I'll get some pain relief soon without needing too many $35 pills (before the discount I hope still works).
The tooth may not be salvageable. It has a crown already because of a deep crack from grinding. If it is too destroyed in there I'm going to lose the tooth which will lead to further expenses in getting some kind of fake tooth. That disturbs me; we already are anticipating dental troubles and this is kinda my fault a little in that I'm not good at wearing my bite guard. That is only partly my fault and partly it is a consequence of sexual abuse and the dentist knows this (without an actual discussion; gagging just goes with it) but at the same time I know my teeth are at risk because of the constant dry mouth along with grinding and I can't afford to start losing them now. If it can be saved there is still the really fun question of "can this crown handle drilling?". If it can't I'm out about double the money for a new one. Monday, November 18, 2013
All is not lost-medication redemption maybe
I saw Dr. Brain this weekend. As always she is willing to spend time to make things work, which the neurologist didn't. I don't expect her to, it just would have helped to be sure that I had a script I could pay for before sending me away for 3 months.
Dr. Brain tried pricing every triptan (migraine med group) and then cross-checking with my ability to pay. They are all horribly expensive. The best she found was still more than I could pay. I left knowing that I was going to be able to buy about 1/month and hope I hit the worst headache with it. She did clear me to take some supplements from the list the neuro provided and said another patient who has similar symptoms of bipolar plus similar med issues and migraines just started the same group of supplements and is doing well. I had asked about magnesium in the past and Dr. Body wasn't thrilled because of my wobbly electrolytes. But looking back at them I have stayed very stable at the low end of normal so I'm on magnesium now. It isn't supposed to be a laxative dose but I will be cutting back on my prescription laxative tomorrow. If it is handled ok then I'll be adding melatonin and Co-enzyme Q10, one at a time. Friday, November 15, 2013
No wonder I was grouchy
I now have a reason for my grouchiness and removed post from last night. I have: a migraine, day 2 and I've had one for 9 days of the last 11 including one of the worst ever last night; a toothache; and a cold with a fever. Oh, and somehow I have misplaced my cell phone in my bed and I don't feel like moving to find it.
I also was looking for my thermometer and brought over a little bag that has toothpaste, a comb, etc. that I use when I travel. Toiletries bag? Whatever. I had blown my nose and was sitting her wondering why it smelled like the psych unit. That bag has absorbed the scent, probably from being in a dresser drawer each time. How weird, a little way to visit 6N from my own home. Yippee.Sorry
I posted something last night, now removed, about insurance in which I was pretty impatient with views other than mine and my lack of tolerance. I apologize. Yesterday was a very rough day and I wasn't fair. I did not say what I meant well at all and for that I apologize.
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Thursday, November 14, 2013
Waste of time
I am writing this from an extremely grouchy place. I got a migraine on migraine assessment day. Unfortunately it was a very bad one and they kept shining lights in my eye. Then I stupidly thought I could drive home before it got worse and that didn't happen. It's still annoying me but doesn't seem to be getting worse.
I got good news, I thought. I can take a couple of triptans to stop the migraines as long as Dr. Brain approves. Unfortunately they didn't take the time to see if patient assistance would cover them and if I am eligible. One company covers it but I'm just over the line. The other company I'm eligible for assistance but the triptan isn't offered. The one I was prescribed is $400 for a month's supply. With a discount. The other one is just as expensive. So they sent me home with nothing useful except 2 free pills.Yippee. That probably won't get me through the next 3 months until I have insurance. Not trying these means that I will presumably not be eligible for Botox when I go back, because I think I have to have failed on these. And perhaps in 3 months when I can actually try them they'll work. Wednesday, November 13, 2013
Teeth
There is a lot of information out there, and even on this blog, about side effects of psych meds. One that gets ignored a lot is the damage to teeth. Having dry mouth all the time is hard on your teeth.
I am fortunate to have a dentist who is knowledgeable about psych meds because his brother is also bipolar. So when I first went to see him and my front teeth had something like 28 cavities/pre-cavities because of years of vomiting from lamictal and lithium and then 6 months of vomiting daily from lithium toxicity, he didn't blink, he just fixed them. My front teeth are great looking but they are mostly porcelain. In the first week I knew my dentist I had those 4 teeth repaired and then numerous other fillings. I was in their office daily for a week.Thursday, November 07, 2013
Insurance-My thoughts
This is a very divisive issue right now and I don't mean to offend anyone as I'm positive some of you won't agree with me. But I am going to post this because somehow this insurance thing has become less of a narrative and more like 2 sides of a very tall wall.
I babysat my nieces today and happened to be there when the insurance statement for Geraldine's surgery arrived. My brother-in-law told my sister and I the total and that they didn't have to pay any of it because they'd met their deductible/out-of-pocket, probably with my sister's surgery 3 weeks before Geraldine's. My sister was horrified at the cost and then burst into tears. "What," she said, "would we have done without insurance?".Wednesday, November 06, 2013
Ongoing
I am still not doing very well. My moods change rapidly and drastically and underneath is a depression that makes me want to sleep all the time. The combination of time change, med change and time of year just weren't good.
I kept telling Dr. Mind "I know my light box is in a box labelled with that. I don't know why I didn't keep it out. I need it." He gently suggested doing whatever was needed to retrieve it ASAP. My mom and I went to the storage unit and I dug around and found boxes from the right part of the house but not any that said anything about the light. Finally I gave in and opened "medical supplies", which translated into "asthma gear for when I'm actually sick". At the last minute I opened "items from chest" and there, clearly NOT labelled anything relevant to SAD lamp was the lamp.If I weren't so tired some of this wouldn't matter. I know that. But I AM this time and I really just want to sleep, not apologize from being grouchy all the time, not try to explain why I am cycling.
Friday, November 01, 2013
That's the end of that
Last night I didn't take any topamax. I wanted to see what happened if my blood levels dropped off significantly. And what happened was what I didn't want to happen and yet did.
It looks like the paranoia and maybe the mixed episode was the topamax and not just my brain. With a lot less in my system I felt a lot better today. Little to no paranoia, manageable mood swings. And at this time of year manageable mood swings don't bother or surprise me, especially this year because my SAD lamp is packed in my storage unit. So I guess I'm done with topamax unless things happen in some order that makes Dr. Brain agree to re-try it in a few weeks. I don't think that's likely. Paranoia to the point I'm scaring myself is a pretty good sign there is a problem.I'm hoping that I will not get significantly worse. I'm sure that there will be some changes but I'd like to be able to keep working on the more advanced counseling topic we've been trying to handle lately.
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