She may go home tomorrow. We'll see. She has to meet requirements to go and not all were met as of 7 pm.
There are many things to be extremely grateful for but I can't explain them without risking this becoming a search engine hit for her diagnosis. There is literally one blog that I can find addressing this condition. Everything else is medicalese.
By a month from now I think she'll be a healthy, active, chubby little baby rather than the pale, sleepy, teeny thing she is now and always has been.
My niece is finally doing well. They let the sedation wear off today and she's down to just tylenol for pain. Her catheter is out and she's nursing. She is much more alert than she was when I saw her yesterday which was really hard. She was very pale and lethargic and barely moving around because of the sedation they gave for that purpose.The first time I held her I thought something seemed off. I think she has never looked well and she certainly hasn't grown much. I believe that is about to turn around and she will start to thrive now. I think that the problem she had (which was congenital and can cause issues in utero) was just making her not well. Now she has to heal but she finally has a body where everything is much closer to normal.